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Message from the Board Chair

Message from the Board Chair

NNPDF Installs Justin Hopkin, MD as Board Chair

I am honored to be elected Chair by the NNPDF Board. It is my hope that my experiences as a father to Garrett (ASMD), age 8, will benefit me in my role of advocating for all NPD patients and families. I plan to utilize my background as a physician to keep educated on all clinical trials, treatments and research that is of interest to our community, so that the Board may make ethical, unbiased and informative decisions as we navigate these exciting times of hope together. 

The Foundation has been an excellent resource for me and my family over the past few years. I extend my thanks and appreciation to Lisa Chavez for her leadership as Chair the past several years and also to the NNPDF Board of Directors and staff for their tireless commitment to strengthening the NNPDF so that it can continue to be a vital source of information for families today. The past two years has laid important groundwork and brought us to an exciting time of building. I look forward to continuing to work with the Board and staff to build a strong Family Service Program, while continuing relationships with all our US and International Partners.

Please feel free to connect with me at or any of our staff at

Warm Regards,

Justin Hopkin, MD
NNPDF Board Chair

09/06/2018 jjb