2023 NNPDF Family Support & Medical Conference
31st Annual
NNPDF Family Support & Medical Conference
July 20-22, 2023
Wyndham Grand Orlando Resort Bonnet Creek | Orlando, Florida
Conference Registration | Hotel Reservations | Conference Information
Hotel Dates & Rates
NNPDF special group rate of $159 (plus tax) is available 3 days prior to and 3 days after conference (based on availability).
Agenda at a Glance
Thursday, July 20th
Family Advisory Working Groups (Registration required) 1:00 – 4:00pm
Conference Opening & Welcome Dinner 5:00pm
Friday, July 21st
Scientific Advisory Board Meeting (Invitation only) 7:00am – 8:30am
Conference Sessions 9:00am – 5:00pm
Dinner on your own
Saturday, July 22nd
Conference Sessions 9:00am – 4:00pm
Gala Dinner Event 6:00 – 10:00pm
NNPDF Cora Sterling Endurance Award
Do you know a great young person who shines for Niemann-Pick awareness? NNPDF is seeking nominations for the NNPDF Cora Sterling Endurance Award. This award is presented annually at the NNPDF Family Support & Medical Conference to a young person (under age 25) who shines in raising awareness of Niemann‐Pick disease in the community. Nomination deadline is May 15th.
Joele Ruppert & Joseph Colton ASMD Scholarship
NNPDF is accepting applications for the Joele Ruppert and Joseph Colton ASMD Scholarship created in honor of the lives of these two cherished children (both diagnosed with ASMD) and their parents.
This scholarship provides one-time funding of $500.00 to individuals diagnosed with ASMD for studies in post-secondary (high school) degrees, including two-year colleges, four-year colleges, vocational schools, and other post-secondary institutions.
Read the complete story and learn more about this scholarship opportunity below. Application deadline is May 15th.