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2020 Family Conference


NNPDF Family Support & Medical Conference

Thursday, July 10-12, 2020  |  Virtual Conference  |


Visit for all conference information and registration!


NNPDF Cora Sterling Endurance Award

Do you know a great young person who shines for Niemann-Pick awareness?

The NNPDF is seeking nominations for the NNPDF Cora Sterling Endurance Award. This award is presented annually at the NNPDF Family Support & Medical Conference to a young person (under age 25) who shines in raising awareness of Niemann‐Pick disease in the community. Nomination deadline is May 15th.

CLICK HERE for nomination form and guidelines!

Message from the Executive Director

Dear Friends,

In our March Newsletter we wrote that NNPDF was monitoring the COVID-19 situation and determining how to best proceed with our annual Family Support & Medical Conference. After careful consideration, the NNPDF Board of Directors have decided to move this year’s conference to a VIRTUAL EVENT.

The health and safety of our Niemann-Pick community is most important to us and we feel this is the best way to ensure the health of our families during this unprecedented time. We will hold the conference from July 10-12th. Our virtual conference will be interactive and engaging with the latest in clinical updates, educational sessions from top speakers, and of course, our highly requested family break-out sessions. Our Family Advisory Working Groups will still also take place prior to the conference.

We are working now to adjust our conference agenda for a virtual conference and will open registration as soon as possible. For now, please continue to HOLD July 10-12th in your calendars.

What matters most is our families and the community that we have built. Although we will participate in this year’s conference from our own homes, we will still come together as one Niemann-Pick community, and continue our tradition of supporting one another.

In the coming weeks, check out our Upcoming Events page for more Family Services programs designed to connect and support you.

Are you new to NNPDF or Zoom? It’s ok to just come and listen!

Although we need to remain apart for now, please remember that NNPDF is here for you – we are working remotely from home and available to connect by phone and email! 


Joslyn Crowe
Executive Director

Supporting One Another. Supporting Our Community.