2018 FC Agenda
NNPDF Family Conference Agenda* 2018
Conference Registration will be on Thursday evening and Friday morning.
Activity Zone will be open Thursday evening, and during the morning and afternoon sessions on Friday and Saturday.
THURSDAY – August 2, 2018
- Getting to Know You/First Time Attendee and Mentors
- Welcome and Introduction
- Celebration of Hope
FRIDAY – August 3, 2018
- Welcome from the Board and Introduce Joslyn Crowe, NNPDF ED
- International Patient Registry Update & How NNPDF is supporting in the U.S.
- Disease Support – Group Break Outs
- Drug Development from an Industry Perspective
- Basics of Understanding Clinical Trials & Expanded Access
- FDA Approved Clinical Trials Presentations & Panel with Q&A
- Joslyn Crowe, ED – Meet and greet with families
- On your own
SATURDAY – August 4, 2018
- Research Presentations
- Family Services – Presentation & Interactive Discussion
- Supportive Therapies: Presentation & Small Group Facilitated Discussions
- Share your experience and knowledge with others – Group Break Outs
- 2018 Family Conference Gala
*Conference subjects and topics subject to change