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Posted by on Oct 3, 2014 in Foundation NewsLine |

2014 October Niemann-Pick Disease Awareness Month ~ Day 3 ~ NNPDF & CCNPDF Awarded Genzyme “Patient Advocacy Leadership” (PAL) Award Grant


Dear NNPDF Families and Friends,

With the arrival of “Day 3” as Global Niemann-Pick Disease Awareness Month ~ the National Niemann-Pick Disease Foundation (NNPDF), along with our sister chapter, the Canadian Chapter of the National Niemann-Pick Disease Foundation (CCNNPDF) are pleased to share with our family membership that the NNPDF & CCNNPDF in a collaborative project have been advised that we are 2014 award recipients of a Genzyme “Patient Advocacy Leadership” (PAL) award grant! 
Nadine Hill, NNPDF Executive Director, wrote a grant to the Genzyme PAL program on behalf of both the Niemann-Pick Disease patient advocacy groups in the United States and Canada in support of a Board of Director’s training program ~ titled: NNPDF & CCNNPDF ~ Bridging the GAP to the Future.
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