World Rare Disease Day ~ NNPDF – A Historical Snapshot
Dear NNPDF Families & Friends,
With the coming of Rare Disease Day 2015, the National Niemann-Pick Disease Foundation and its community are taking the time to reflect on our long history of Perseverance and all the things we’ve been able to accomplish with the continued support of families and friends over the years.
The NNPDF was lucky enough to be featured in a recent issue of the Lysosomal Disease Network (LDN) monthly online newsletter, “INDICATIONS”. This detailed history covers the work of the Foundation as a it relates to who we are, what we do and just how far we have come since the foundation was established in 1992!
The article was written by Evelyn Redtree, writer & editor of the LDN ‘Indications’ newsletter. Evelyn interviewed key NNPDF staff, Board of Director’s, researchers and scientists to create a complete history behind the foundation, the research goals you, our community, have helped us reach!