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What Is Pick’s Disease?

The National Niemann-Pick Disease Foundation supports families with loved ones who have been diagnosed with Niemann-Pick Disease, which is different than Pick’s Disease.  However, the NNPDF occasionally receives inquiries about Pick’s Disease.  This page is provided as a basic referral for those seeking information about Pick’s Disease or Frontotemporal Dementia.

For information about Pick’s Disease or Frontotemporal Dementia, please contact:

NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Voice: 800-352-9424 or 301-496-5751
TTY (for those using adaptive equipment): 301-468-5981
Web site:

Association for Frontotemporal Dementias (AFTD)
Radnor Station Building 2 Suite 320
290 King of Prussia Road
Radnor, PA 19087
Tele: 267-514-722; 866-507-7222
Web site:

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
Tele: 203-744-0100; Toll-free: 800-999-6673 (voicemail only)
TDD Number: 203-797-9590;  Fax Number: 203-798-2291
Web site:

Alzheimer’s Disease organizations may be able to provide information about Pick’s Disease or suggest appropriate local resources and support groups.

Additional resources:

Pick’s Disease Support Group (UK)