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The progression of Niemann-Pick Disease

The progression of Niemann-Pick Disease is highly variable. Even two children diagnosed within the same family may not follow the same rate of progression. Below are photos depicting the progression of Niemann-Pick Disease Type C for two children in particular, as chronicled by their parents.

Also, check out these links to more “parent perspectives:”


Adam Michael Ward (NPC)
1/13/90 – 6/4/00

Adam died on June 4, 2000, at the age of 10 years


Stacey Lynne Vorpahl (NPC)
1/3/85 – 10/9/04

Our daughter, Stacey Lynne, was born January 3rd, 1985.
She was jaundiced at birth but otherwise seemed happy and healthy.

[March 1, 2010 mem]