Support These NPD Awareness Events This Weekend!
Dear NNPDF Families and Friends,
The NNPDF Central Office would like to remind our family membership that there are two NPD related events taking place this weekend!
The first event is being hosted by the Phil and Andrea Marella Family in loving support of their children with NPC, Dana and Andrew.
Gladys Knight in Concert for DART
Saturday, May 30th, 2015
Palace Theatre, Stamford, CT
On Saturday, May 30th, 2015, Gladys Knight will perform for Dana’s Angels Research Trust (DART)! 7-time Grammy Winner GLADYS KNIGHT will headline DART’s 2015 Gala Concert for NPC research! Come ride THE MIDNIGHT TRAIN… to Stamford!
The concert will kick-off with a Gala Benefit that includes an elegant cocktail reception with a pasta bar by World-Famous RAO’s Italian Restaurant, silent and live auctions, and celebrity hosts Kathie Lee and Frank Gifford. Scott Shannon of WCBS-FM 101.1 will introduce Gladys Knight!
The second event is an event in support of the International Niemann-Pick Disease Alliance (INPDA).
Felix Schleuniger from Switzerland will start his 2,500 mile Great Mountain Bike Ride on Sunday, May 31st, 2015.
Please join us in Albuquerque on May 31st to support Felix and Niemann-Pick patients worldwide.
Felix is riding and fundraising for the International Niemann-Pick Disease Alliance, a support organization for those affected by Niemann-Pick Disease.
Lisa Chavez, Co-Vice Chair of the NNPDF, her family and other Niemann-Pick families from the nearby community of Albuquerque, New Mexico will be meeting Felix at the start-line of his trek and wishing him good luck on his arduous journey.
Please share this information and the INPDA FaceBook page developed in support of Felix with all of your friends and be certain to follow Felix along on his adventure! http://www.facebook.com/inpda.gdmbr