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NNPDF Store

                                                    NNPDF Awareness Items

NNPDF Promotional Products Available
Great fundraising and awareness items or thank you gifts for volunteers!
Be sure to also check out this page for more items! NNPDF posters available
Order form for posters above

NEW!  PERSEVERE Window Decals -- produced by a good friend of the NNPDF - sales benefit the foundation.  Visit Mandy's Etsy shop - Victory Decals to order.  Decal application tips (pdf).

Bryan and Laura Hadley offer handy "Persevere" cell phone holsters/pouches embossed with an inspirational message.  Visit www.orcacellular.com "Support the Cause" to order.  Contact the Hadleys for pricing if you are interested in selling the pouches as part of a fundraiser for NNPDF.

Vinyl Banners -- These heavyweight, quality banners are wonderful for fundraising or awareness-raising events.  One of our member families makes these customized banners, and they make a donation to the NNPDF for each banner produced. Contact the NNPDF at nnpdf@nnpdf.org for more information. 

Don't leave home without your periwinkle  "Persevere" wristbands to show your support for those with Niemann-Pick Disease!  You will also want to check out our NNPDF Family Cookbooks, full of unique recipes from our member families.  Wristbands and cookbooks are available from the NNPDF office.

The NPD Persevere pin (shown enlarged, below) makes a nice gift for family and friends who support our quest for a cure.

  NPD Persevere Pin

Each pin is approximately 1 and1/4 inch wide and 3/4 inch high, and is high-quality enamel over a white-gold-look background.   Colorful yet tasteful, it brightens any lapel, collar or hat while conveying our message that we will Persevere against NPD.

We also have several informative videos about Niemann-Pick Disease available. 

Customizable press release   Check out this sample press release. We can help you tailor a press release if you need assistance publicizing your awareness or fundraising event. If you need assistance writing a press release, please complete this press release information form and return it to the NNPDF Central Office.

Scroll down to find more items to help with your fundraising event or public awareness campaign. These items were originally created by members and supporters and donated to the Foundation.

Items provided by the Foundation are free of charge. However, a donation is requested to offset costs.

To order, print out and complete this order form and send it with your payment to:

NNPDF
P.O. Box 49
Fort Atkinson, WI  53538

Contact the NNPDF with any questions: 
1-877-287-3672
nnpdf@nnpdf.org

Items marked ** are sold by third parties with proceeds benefitting the NNPDF. Sales tax and/or shipping and handling charges may apply.  (For items marked **, order directly from the third party listed)

Item                          Order Form (pdf)

Recommended Donation/Ordering Info

Persevere Wristbands -- Adult size or Youth size
Periwinkle blue rubber wristband

$1 each
Persevere Pins  
(click here for picture)
Gold pin with multi-color logo and "Persevere" 		$5 each
PERSEVERE Window Decals ** $4 each or 3 for $10 Visit Victory Decals Etsy Shop to order
Cell Phone Holsters/Pouches **
"PERSEVERE  Blessed is the man who perseveres under trial.   James 1:12" 		Order by visiting www.orcacellular.com (Support the Cause page) or by calling 1-800-992-5526. Offered by Bryan and Laura Hadley www.hadleyhope.com
Generations of Great Cooking **
Recipes from NNPDF member families 		$5 each
NNPDF Brochures
Overview of Niemann-Pick Disease and the Foundation's work. 		 Free
NNPDF Newsletters (most recent issue)
 Free
Videos -- Ryan's Story, Learning about NPD, A Physician Talks About NPD (3 segments all on one DVD or VHS tape)
$5 each
Truck Campaign
A silk screen design for the back of large trucks as part of the public awareness campaign. 		Contact NNPDF for more details.

All logos are copyrighted or are registered trademarks of the respective company.

The National Niemann-Pick Disease Foundation does not endorse or warrant these companies and products. This page is presented for informational purposes only.

The Foundation is an associate of Amazon.com and receives a percentage of sales made through the Amazon.com links.

Shop Here and Benefit the NNPDF

The National Niemann-Pick Disease Foundation (NNPDF) will receive a donation from Amazon.com for all purchases you make when you start from this page.

  • You can also search for and purchase books from Amazon by visiting the NNPDF Book Store.


  • If you find books or other items that are particularly helpful, please let us know so we can make them available to other families.


  • You can also purchase Awareness Items directly from NNPDF.
Amazon.com link
NNPDF Products

Please read this message from NNPDF mom Lorna Tyrrell, regarding her popular PERSEVERE Wear line of clothing and accessories:

Dear NPD family,

After careful consideration,  I have decided to cut back on my time spent taking care of PERSEVERE Wear orders.   

Over the last few months Naomi has required more and more physical time and energy, as well as my other children needing me-- and I've realized that I just can't keep up.

I created the PERSEVERE t-shirts and hoodies with the hope of spreading awareness of Niemann-Pick Disease, as well as offering support to the other families who are making efforts with fundraisers, etc.  And I am still committed to that.

I will still be willing to provide families with shirts and hoodies  in bulk (25  items or more),  so if you need anything for a fundraiser, or want to get a group of families together to order, please email me and I'll be glad to get those for you.   I will also still have items available at the NNPDF Family Conference.

Thank you,

Lorna

Order Form


2011 Calendars!
Available in Two Designs

Available now, in plenty of time for holiday gift-giving!

These very special 2011 wall calendars are dedicated to the children and families who face the challenges of Niemann-Pick Disease. 

Your purchase will help give hope to families affected by NPD as it raises funding for essential research into treatments and a cure.

$10 each, plus $2 shipping for one, $3 shipping for two, $5 shipping for three or four. Free shipping on orders of five or more calendars.

Order directly from the calendar's creator, Lorna Tyrrell, mom of Naomi Tyrrell (NPC).

 Puppies Calendar Cover

Treasuring Each Day:
Working Together to Cure
Niemann-Pick Disease

This calendar, full of playful puppies and sayings of hope and inspiration, is dedicated to all those affected by Niemann-Pick Disease. 

Your purchase of this calendar or the one below helps give families hope as it raises funding for essential research into treatments and a cure for NPD.

Love Always Hopes

This labor of love is the passion of New England artist Don Greer.  It is a collection of his daughter's favorite works, compiled in honor of his granddaughter's fight against Niemann-Pick Disease Type C (NPC). 

Along with Mr. Greer's beautiful scenic paintings, the calendar features inspirational Bible verses on each month's pages.

Love Always Hopes Calendar Cover
 

 

[Updated Dec 13, 2011 mem; Feb 23, 2012 mem]