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Posted by on Apr 3, 2013 in Foundation NewsLine |

Running for Rare Disease in Memory of Wylder Laffoon

Dear NPD Familes and Friends,

Running for Rare Diseases, an amateur running team comprised of Genzyme employees, is honoring our precious Wylder Laffoon (05/15/09 – 07/20/12, NPA) by o

ne of their members running in his memory at this years Boston Marathon!

Runner Phil Mederia chose to represent NPD and help to spread awareness, along with his team mates who are working with NORD to promote their project “Promote Early Diagnosis”.

We encourage our families and friends to visit their Facebook and “Like” the page to show we stand with Phil and his team for their efforts to spread awareness for rare diseases and honor the memory of Wylder.

Please visit the Newsline page for links and further information.