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Posted by on Jan 21, 2011 in Foundation NewsLine |

Rare Disease Day – February 28, 2011

“Alone we are Rare,
together we are Strong.”

The National Organization for Rare Diseases (NORD) will celebrate Rare Disease Day on Monday, February 28.

This year’s worldwide theme is “Rare but Equal” which will highlight “Rare Diseases and Health Inequalities.”

A disease or disorder is defined as rare in the USA if it affects fewer than 200,000 Americans at any given time. Thirty million Americans are affected by rare diseases, including those affected by Niemann-Pick Disease.

Join hands with others around the world, and get involved in raising awareness of rare diseases. Please visit the NNPDF NewsLine page for more information and links to videos and stories of those whose lives are affected by rare diseases.