NNPDF Reflections ~ 2014
Dear NNPDF Families and Friends,
Today, as we all take time to reflect on the past year, the NNPDF community has quite a number of uplifting and positive milestones upon which to reflect for 2014. Unfortunately, we again have had heartbreaking losses of loved ones to Niemann-Pick Disease whom we all hold so close to our hearts. Despite these soul crushing losses, the NPD community has made considerable progress in research and advancement towards therapies with the start of patient clinical trials for both Niemann-Pick type C and ASMD (NPD Type B). There have also been many personal triumphs shared within the community and the foundation continually to strives towards offering and building upon our stellar family support programs and continued financial commitments towards research.
To cap off 2014, we have created a “Year-end” e-Newsletter to share with the NNPDF community.
We have been fortunate to be a part of your lives throughout the year and are looking forward to the HOPE which 2015 will bring.
Have a warm and love filled New Years and we’ll see you in 2015!