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Foundation NewsLine


 

April 2017 Newsletter

Posted by on Apr 18, 2017 in Foundation NewsLine | Comments Off on April 2017 Newsletter

April 2017 Newsletter

The NNPDF April 2017 eNewsletter is now available. Follow this link… Link text

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Dillon Papier

Posted by on Apr 11, 2017 in Foundation NewsLine | Comments Off on Dillon Papier

Dillon Papier

It is with great sadness our hearts go out to the family of Dillon Papier. As part of the NNPDF family, please join us in offering our thoughts and support to Dillon’s family.

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Ashtyn Wright

Posted by on Mar 22, 2017 in Foundation NewsLine | Comments Off on Ashtyn Wright

Ashtyn Wright

As part of the NNPDF family, please join us in offering our thoughts and support to the family of Ashtyn Li Wright. May they find peace and love in the memories they...

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March 2017 Newsletter

Posted by on Mar 21, 2017 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on March 2017 Newsletter

March 2017 Newsletter

The NNPDF March e-Newsletter is now available online. Check it out here… NNPDF MARCH...

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Announcement From Vtesse

Posted by on Mar 15, 2017 in Foundation NewsLine, Type C | Comments Off on Announcement From Vtesse

Announcement From Vtesse

Vtesse Completes Enrollment of Phase 2b/3 Pivotal Clinical Trial of VTS-270 in Niemann-Pick Type C1 Disease. CLICK HERE FOR FULL ANNOUNCEMENT

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INPDA Forgotten Youth Video

Posted by on Feb 28, 2017 in Foundation NewsLine | Comments Off on INPDA Forgotten Youth Video

INPDA Forgotten Youth Video

In collaboration with the members of the INPDA and to help bring awareness to Rare Disease Day 2017, the NNPDF is pleased to share this video and information flier. Follow the link below… FORGOTTEN...

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Orphazyme Update #14

Posted by on Feb 27, 2017 in Foundation NewsLine, Type C | Comments Off on Orphazyme Update #14

Orphazyme Update #14

Orphazyme AIDNPC Clinical Programme Update #14 is now available. Follow the link below for updates. AIDNPC CLINICAL PROGRAMME UPDATE #14

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CTD Closes on Private Placement

Posted by on Feb 23, 2017 in Foundation NewsLine, Type C | Comments Off on CTD Closes on Private Placement

CTD Closes on Private Placement

CTD Holdings Closes on $2 Million Private Placement CLICK HERE FOR MORE INFOMATION

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NNPDF February 2017 eNewsletter

Posted by on Feb 22, 2017 in Foundation NewsLine | Comments Off on NNPDF February 2017 eNewsletter

NNPDF February 2017 eNewsletter

The NNPDF February 2017 eNewsletter is now available! Follow this link… NNPDF February 2017 Newsletter...

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CTD Holdings Update

Posted by on Feb 20, 2017 in Foundation NewsLine, Type C | Comments Off on CTD Holdings Update

CTD Holdings Update

CTD Holdings Presents Compassionate Use Data on Trappsol(R) Cyclo(TM) to Treat Niemann-Pick Disease Type C and Provides Update on Progress of U.S. and EU Clinical Trials at 13th Annual WORLDSymposium CLICK HERE FOR COMPLETE...

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