Pages Menu
FacebookTwitterPinterestRss
Categories Menu

Foundation NewsLine

Foundation NewsLine


 

NNPDF January 2017 eNewsletter

Posted by on Jan 17, 2017 in Foundation NewsLine | Comments Off on NNPDF January 2017 eNewsletter

NNPDF January 2017 eNewsletter

The NNPDF January 2017 eNewsletter is now available! Just follow this link… JANUARY 2017...

read more

Vtesse Announces Dosing of First Patient in Australia…

Posted by on Jan 10, 2017 in Foundation NewsLine, Type C | Comments Off on Vtesse Announces Dosing of First Patient in Australia…

Vtesse Announces Dosing of First Patient in Australia…

VTESSE PRESS RELEASE Vtesse Announces Dosing of First Patient in Australia in Phase 2b/3 Clinical Trial of VTS-270 in Niemann-Pick Type C1 Disease CLICK HERE FOR FULL...

read more

Vtesse December 2016 Newsletter

Posted by on Jan 5, 2017 in Foundation NewsLine, Type C | Comments Off on Vtesse December 2016 Newsletter

Vtesse December 2016 Newsletter

VTESSE DECEMBER 2016 NEWSLETTER Update on the Clinical Trial of VTS-270: The NPC Study VTESSE DECEMBER 2016 NEWSLETTER

read more

Recently Published: Dr. Andrew Munkacsi Paper on Vorinostat

Posted by on Jan 3, 2017 in Foundation NewsLine, Type C | Comments Off on Recently Published: Dr. Andrew Munkacsi Paper on Vorinostat

Dr. Andrew Munkacsi Published Paper on Vorinostat The NNPDF Central Office has received a copy of a recent publication by  Dr. Andrew Munkacsi, an NNPDF/CCNNPDF funded fellow,  that provides insight into Vorinostat as a candidate therapy to treat NPC Disease via the first animal study in a model of NPC disease.  To view the publication abstract and complete publication follow the links below. ABSTRACT     COMPLETE...

read more

2017 Infiniti Coaches’ Challenge

Posted by on Jan 3, 2017 in Foundation NewsLine, Type C | Comments Off on 2017 Infiniti Coaches’ Challenge

The Infiniti Coaches’ Challenge A Vote for Coach Painter is a Vote to Help Fight NPC! Infiniti and the National Association of Basketball Coaches will once again sponsor the Infiniti Coaches’ Charity Challenge. In its seventh year, the Infiniti Coaches’ Charity Challenge rivals 48 NCAA Division 1 basketball coaches to compete by online voting to win $100,000 for the charity of their choice. Purdue University Coach Matt Painter has once again named the BReaK Thru Fund for NPC Research as his charity! The BReaK Thru Fund for NPC Research...

read more

NNPDF Community Update…

Posted by on Jan 2, 2017 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on NNPDF Community Update…

NNPDF Community Update from Lisa Chavez, Board Chair DECEMBER 30, 2016 Dear Members,   As promised, we are reaching out with an end of year update on our transition and are pleased to report that there has been a very positive response to the Community Needs Assessment. As you know, NNPDF has retained Amy Kant of AEK Consulting for this second phase which involves evaluating your feedback and taking a deeper look at the NNPDF organization. There has been overwhelming participation in this second feedback phase which includes the CNA Survey...

read more

Warm wishes for 2017 from the NNPDF

Posted by on Dec 30, 2016 in Foundation NewsLine | Comments Off on Warm wishes for 2017 from the NNPDF

Warm wishes for 2017 from the NNPDF

read more

NNPDF December 2016 eNewsletter

Posted by on Dec 21, 2016 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on NNPDF December 2016 eNewsletter

NNPDF December 2016 eNewsletter

The NNPDF December 2016 eNewsletter is now available. Follow this link… DECEMBER 2016 eNEWSLETTER

read more

NNPDF Updates and Reminders

Posted by on Nov 30, 2016 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on NNPDF Updates and Reminders

NNPDF Updates and Reminders

Updates and Reminders from the NNPDF Central Office Follow the links below for the latest updates and reminders. ASMD RESEARCH REQUEST ORPHAZYME UPDATES SANOFI GENZYME PRO STUDY VTESSE...

read more

Draven Dakota Brown (ASMD)

Posted by on Nov 29, 2016 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on Draven Dakota Brown (ASMD)

Draven Dakota Brown (ASMD)

Draven Dakota Brown (ASMD) 11/21/2006 ~ 11/26/2016   Dear NNPDF Families and Friends, It is with great heartache that we notify our NPD family membership of the passing of Draven Dakota Brown (November 21, 2006 to November 26, 2016), who courageously fought the ASMD battle for 10 years. Draven was an avid wrestling fan, enjoyed going bowling and loved the Dallas Cowboys.  He really enjoyed singing Luke Bryan songs!  To Draven’s loving mother and father, Ginger & Paul, and his brother, Hunter, please know that your NNPDF family is...

read more