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Posted by on Aug 12, 2015 in Foundation NewsLine |

Katherine Grace “Katie Grace” Limer (NPC)  ~ 08/06/2005 ~ 8/11/2015

Katie
August 6, 2005 – August 11, 2015 ~ NPC, Age 10 years

Dear NNPDF Families and Friends,

It is with a sorrowful hearts that we notify our NPD family membership of the passing of Katherine Grace Limer (August 6, 2005 – August 11, 2015), who courageously fought the NPC battle for 10 years. 

Katie Grace just celebrated her 10th birthday with her family and friends in a beautiful white dress. Her cake was colorful just like her personality. She loved listening to “Big Time Rush” and singing out loud often to the rooftops!

Many in our NNPDF family membership will recall the day that Katherine Grace “Katie” was born as she made her special appearance into this world ~ while her NPD families were gathered at the Manhattan Beach, California Family Conference in 2005! We all celebrated with great joy at her arrival!

Katie and her family last joined us at the 2012 Family Conference in Nashville, TN. She shared her sweet sparkle of a smile and twinkle in her eye with all that she met and joined us for the Saturday evening gala & dance dressed in bedazzled in red sparkles, a silver glitter gloved hand and hat to top off her gleaming attire! 

Katie Grace’s family note that she is now gleefully playing in heaven with her sister, Rebecca Marye and brother, Andrew Thad, who also suffered from Niemann-Pick Disease and who passed away in 2004 and 2005 respectively.

To Katie Grace’s loving parents, Thad and Leah, and her beloved older sister, Megan Elizabeth, please know that your NNPDF family is here for you and holding you all in our hearts and thoughts. We are truly heartbroken for you all but are comforted in knowing that the love and support you receive from those who loved Katie most will provide you the fortitude and strength that you will require in the coming days, weeks and months ahead without your precious Katie at your sides. Please reach out to us if you need us ~ we will be here for you.

For more information regarding her memorial service please visit the NNPDF website Newsline: http://www.nnpdf.org/Newsline2015.html#KatieGrace