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Posted by on Dec 15, 2011 in Foundation NewsLine |

International Niemann-Pick Disease Alliance Meets

International Niemann-Pick Disease Alliance
Second NPD International Advocacy Meeting Held in Spain

The International Niemann-Pick Disease Alliance (INPDA) met November 13-14, in Toledo, Spain, to share updates and to reinforce and develop worldwide networks.

Representatives from patient support groups representing 11 countries (including those from the NNPDF and CCNNPDF) and pharmaceutical companies, along with clinicians and scientists from around the world, were in attendance.

Goals and objectives for the INPDA were set for the next two years with an emphasis on collaboration in family services and research.

The INPDA was established in 2009 to provide a forum for the exchange of information, experience and knowledge for the purpose of accelerating progress in the fight against Niemann-Pick Disease.

To see photos from the INPDA meeting, visit the NNPDF’s NewsLine page.