Fundraising and Awareness Events
Fundraising and NPD Awareness Events
Don’t forget to let us know about your fundraising or awareness events as soon as you have the date! The NNPDF Central Office can help you out. Just check out the Fundraising and NPD Awareness Services Plan.
November 2017 Campaign
The Berns, Honsinger, Kaflowitz, Koujaian, and Reedy Families Thanks $4 Giving campaign runs through Thanksgiving to raise awareness and funding for NPC research. They are asking everyone they know for a one time donation of $4.
For complete campaign details, click the button below.
140.6 Mile NPD “FUN”raiser
Mike Smith is doing his 18th triathlon at the Iron distance (2.4 mile swim / 112 mile bike / 26.2 mile run) at The Great Floridian on 10/21/2017. His wife Anne OConnor-Smith, an NNPDF Board member who has ASMD (Niemann-Pick Type B), will be managing the race transition area for 6 hours as a volunteer.
In honor of October being Anne’s birth month and NPD Awareness Month, we are seeking $25 donations to also celebrate NNPDF’s 25 year anniversary.
Please celebrate with us that Anne has lived 40 years longer than was predicted at diagnosis and persevere with us as we work to get NPD treatments approved and to market!
About the Challenge
The No Pucker Challenge’s goal is to drive awareness and help find a cure for NPC. It was developed by the McGlocklin family and Do/Love/Live. This is a community wide project with many collaborators of NPC families, the research efforts of SOAR and the APMRF, the NNPDF and international groups.
Yankee Candle Online Fundraiser
In Memory of Bryanna Desouza and
In Honor of Niemann-Pick Disease Families
Sales run through December 31, 2017
Bryanna Desouza (NPC) | Jan 20, 1992 ~ Dec 5, 2006
Judy Desouza will be hosting a Yankee Candle fundraiser in memory of her daughter, Bryanna (NPC) and in honor of all Niemann-Pick Disease families. Judy, in working with Yankee Candles, will dedicate 40% of profits from both local and online orders to the NNPDF.
Pretty in Periwinkle
Nail Wraps for Niemann-Pick Disease
Show your support in the fight against Niemann-Pick Disease with these custom Jamberry nail wraps. 30% of all sales will be donated to the National Niemann-Pick Disease Foundation for family support services. Available year round!
Contact the NNPDF Central Office at email@example.com!