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Aug2016

Family Conference Recap  |  2016 NNPDF Board Meeting


July2016

Family Conference Information  |  Clinical Trial Updates
FDA Overview  |  INPDA Update  |  Global Genes RARE
NORD Update  |  2016 NNPDF Board Meeting


June2016

Family Conference Information  |  NNPDF Webinar Recording
Fundraising  |  Research Updates  |  RFA Update
NEWS  |  2016 NNPDF Board Meeting


May2016

Give the “Gift of Hope”  |  iGive.com  |  Goodshop  |  Amazon Smile
Bravelets & Awareness Beads  |  Persevere Wristbands  |  PersevereWEAR


April16

Board of Directors  |  2016 Family Conference
Reseach Applications  |  Clinical Trial Updates


Dec2015

Give the “Gift of Hope”  |  iGive.com  |  Goodshop  |  Amazon Smile
Bravelets & Awareness Beads  |  Persevere Wristbands  |  PersevereWEAR


Nov2015

INPDA Meeting  |  2015 Global October Awareness
National Family Caregiver Month  |  Giving Tuesday 2015  |  PersevereWear
Clinical Trial Recruitment  |  Reminder from Chris Klauer


October2015

Global October Awareness Month  |  2015 Family Conference Recap
Clinical Trials: Updates and Recruitments
NNPDF Fellowship Progress Reports


September2015

2015 Family Conference Recap  |  Research and Clinical Trial Updates
Global October Awareness Month  |  Reminder from Chris Klauer


August2015

2015 Family Conference Recap  |  Equipment Exchange Update
Research & Clinical Trial Updates
Reminder from the Family Services and Marketing Coordinator


July2015

2015 Family Conference  |  Equipment Exchange Update
Research & Clinical Trial Updates  | 2015 NNPDF Board Meeting
Reminder from the Family Services and Marketing Coordinator


June2015

 2015 Family Conference  |  NNPDF Board Communication Page
NNPDF Membership Registration
INPDA New Website  |  Clinical Trial Updates


May15

2015 Family Conference  |  NNPDF Board Communication Page
NNPDF Online Membership Form  |  NNPDF Fellowship Progress Reports
Fundraising Season


April15

Family Conference 2015  |  New NNPDF BOD & Staff
Request for Fellowship Applications
Clinical Trial Updates  |  Equipment Exchange


Mar15

Family Conference 2015  |  100,000 Won for NPC
World Rare Disease Day  |  2015 NNPDF Board Meeting


Feb151

World Rare Disease Day  |  WORLD Symposium
Compassionate Use  |  Medicare Transaction
Coaches Charity Challenge  |  2015 Annual Board Meeting


January15

Vtesse Announcement  |  Clinical Trial Updates
Coaches Charity Challenge  |  2015 Annual Board Meeting


Dec2014

Giving the Gift of Hope  |  iGive  |  Goodshop
Amazon  |  Bravelets & Beads  |  Persevere Wristbands


November14

Giving “Tree” Tuesday  |  Expression of Hope
National Caregiver Month  |  NPC vs. Ebola


Oct14

October Awareness Month ~ Research
Persevere Award  |  NNPDF Tributes  |  2014 Fellowships
Genzyme PAL Award  |  October 2014 Recap


Sept14

October Awareness Month  |  Think Again. Think NPC.
Equipment Exchange  |  Family Voices  |  Clinical Trial Updates
Board Membership Call  |  Family Conference Photo


Aug

Family Conference Experience  |  2014 FC Recap & Memorial


July14

2014 Family Conference  |  Getting Around
Things to Do  |  Alcatraz Island Tour


June14_000

Family Conference 2014
2014 Summer Fundraising  |  NNPDF Newsline


May2014

2014 FC Registration  |  Welcome to Lee Ann Keener
Research Updates  |  Rare Disease Research


Apr14

2014 Family Conference  |  Request for Fellowship Applications
Research Updates  |  2014 New SAB Chair


Mar14

2014 SAB  |  Research Updates
Request for Fellowship Applications
Rare Caregivers Site  |  2014 Family Conference


Feb14

Rare Disease Day  |  Request for Fellowship Applications
Clinical Trial Updates  |  2014 Family Conference


Dec2013

Gift of Hope in 2014  |  Caring for the Caregiver
Legacy of Hope  |  In Memoriam


Nov13

Giving the Gift of Hope  |  iGive
Goodshop  |  Amazon  |  Persevere Wristbands
Bravelets & Beads  |  Willow Wicks  |  PersevereWEAR


Oct2013

October Awareness Month  |  Recipes for Success
Pandora-Like Bead  |  PersevereWEAR  |  Persevere Wristbands
Fundraising Events  |  1-2-3 Awareness


June2013

2013 Family Conference
2013 Fundraising Season  |  Clinical Trial Updates


March2013

2013 Family Conference  |  NIH Cyclodextrin Clinical Trial for NPC
NPD ASMD Updates  |  NNPDF Welcomes 2013 SAB Members
2013 World Rare Disease Day  |  NNPDF Welcomes New Staff
NNPDF Annual Board Meeting


Dec12

2012 Holiday Greetings  |  2012 Family Conference
NNPDF Clinical Trial Updates


July2012

NNPDF 20 Year Anniversary  |  2012 Family Conference
2012 Summer Fundraising  |  Research Applications Under Review


March12

2012 Family Conference Dates  |  Fellowship Request for Applications
Blood Draws for NPC  |  NNPDF 20th Anniversary


Dec2011_000

Warm Wishes from the NNPDF
2012 Upcoming Events  |  ASMD Clinical Trial Update


October2011_000

October Awareness Month  |  Research Fellowship Updates
11-11-11 Challenge  |  2011 Family Conference Recap


April2011_000

2011 Family Conference  |  Cyclodextrin Clinical Trial
Research Projects Updates  |  HDACi Studied for NPC
2011 Fellowships ~ RFA  |  NNPDF SAB Member Update


March2011_001

2011 Annual Board Meeting Recap  |  Research Updates
Pentchev Fellowship RFA  |  World Rare Disease Day


Dec2010_000

Holiday Greetings from the NNPDF


CCNNPDFNews2_001


Nov20151

INPDA Meeting  |   “Think again. Think NPC”
2015 Global October Awareness  |  National Family Caregiver Month
Giving Tuesday 2015  |  PersevereWear
Clinical Trial Recruitment  |  Reminder from Chris Klauer


June-July2015

The 23rd Annual NNPDF Conference  |  Message from the NNPDF Board
APMRF Annual Conference  |  CCNNPDF Membership
INPDA New Website  |  Clinical Trial Updates


MayJune

Think Again. Think NPC. CANADA!  |  Research Progress Reports
The 23rd Annual NNPDF Family Conference
Clinical Trial News and Updates
CCNNPDF Membership ~ Action Required
CCNNPDF Fundraising  |  Meet the CCNNPDF Members of the Board



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NNPDF Direct Mail Campaigns
to our Supportive and Generous Contributors



Newsletters of the
Niemann-Pick Disease Group (United Kingdom)

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