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NPD Family Resources

NPD Family Resources

Information for Families

The National Niemann-Pick Disease Foundation supports individuals and families affected by Niemann-Pick Disease.  Our support covers a range of needs that occur at various stages of Niemann-Pick Disease.  We offer referrals to assist with diagnosis and treatment of NPD, guidance for care of individuals with NPD, assistance to families caring for loved ones with the disease, educational tools, and even information on insurance matters and legal issues.

This Web site is continually updated, but if you don’t find what you’re looking for, contact NNPDF.

The NNPDF is a 501(c)(3) nonprofit organization that funds research toward treatments and a cure for NPD and supports individuals and families affected by the disease.  We count on, and we’re grateful for, your support to do our work.
First Response to a New Diagnosis
Coping Emotionally with Niemann-Pick Disease
Care Giving Tips
Genetic Counseling
Hospice, Palliative and Respite Care
Education (IEP)
Legal and Insurance

Additional Information and Resources:

Other Organizations that Address Niemann-Pick Disease:

Resources for NPD Families

National Institutes of Health (NIH)

U.S. Department of Health and Human Services

U.S. Social Security Disability

Organizations Addressing Other Lysosomal Storage Diseases

Rare Disease Organizations

Other Links

11/14/2016 jjb