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Equipment

Special Equipment and Resources



NNPDF Equipment Exchange Program

Do you have equipment needs, or equipment to share?


Equipment Donation/Request Form

As NPD patient and family needs change during a chronic illness, there may be equipment stored in homes that is no longer needed and could be put to use by another family. The NNPDF will assist families who wish to donate this equipment. Our goal is to ensure that all NPD families have access to equipment that they need to assist their loved ones affected by Niemann-Pick Disease.

The foundation will retain and post on the Web site a log that describes the type of available equipment and information about equipment needs.This program is being funded in large part by the Jami and Lisa Chavez family in memory of their daughter, Breann, who passed away from NPD Type C in June 2006, at the age of 3 years. Their annual “Ducks for Bucks” event generates the funds to assist in offsetting the cost of shipping equipment from home to home.


Here’s how the program works:

Anyone who has equipment to donate to the program, or who has a need for equipment, should complete and submit the Equipment Donation/Request Form.

Due to the cost of shipping, participation in this Equipment Exchange program is limited to residents of North America. Families with a member affected by Niemann-Pick Disease who live outside North America may contact us and we may be able to make referrals to other sources for equipment needs.

For equipment to be donated, fill out the Equipment Donation/Request Form and fax or email it to the NNPDF office. Be sure to provide model numbers, a Web link to the product (photo and description) if possible, and any relevant measurements or details so that families will know specifically what is available, and for what size of child/adult it is appropriate. Include a digital photograph of the equipment if you can. Also, provide information on the condition of the item – use terms such as “new”, “like new”, “gently used”, “used”, “well-used”. Please do not offer items that are heavily soiled or are very worn. Be sure to provide full contact information so that an NNPDF staff member can contact you if there is question about, or a request for your item. The item will be posted on this page. Posting time will not be limited. Your contact and other information WILL NOT be posted on the NNPDF web site.

Families who have equipment needs should complete the Equipment Donation/Request Form and fax or email it to the NNPDF office. Please be as specific as possible when describing equipment needs.

The NNPDF will facilitate communication among families donating equipment and families needing equipment when necessary. We are partnering with local and national distribution services to assist with shipping equipment to and from families at little or no cost. Call the NNPDF Central Office at 1-877-287-3672 or send an e-mail to nnpdf@nnpdf.org if you have questions about the program or need assistance with donating and/or requesting equipment. Completed forms may be faxed to the NNPDF Office at: 920-563-0931.



Equipment Offered – Looking for a New Home


Invacare
Solara Wheelchair
Condition:  Used – Like New

wheelchair     wheelchair-side-view     wheelchair-back-view

 

The Invacare Solara incorporates features never before available on a manual tilting chair.   This chair is roughly 20″ wide, 48″ depth and 44″ high.  This chair was used as the person was unable to use it to their satisfaction.  It was built so that it would tilt back and forth.  

Please click here for a specification sheet that was sent to us by the family.


 Shower Chair
Condition:  Used 

shower-chair

This shower chair has been used and is being offered to a family in need of one to make life a bit easier.


Rifton Pacer 503
Condition: Used – Like New

rifton pacer 503

Designed for a wide range of clients with varying abilities, Rifton Pacer gait trainers are renowned for their modular design, durability, and flexibility. When appropriately supported and positioned in a Pacer, thousands of people of all ages have enjoyed independence and improved strength and confidence.

This item is a large model (31-46″) and has a weight limit of 200 lbs. Click here for additional product information.



Rifton Pacer 502
Condition: Used

rifton pacer 502

Designed for a wide range of clients with varying abilities, Rifton Pacer gait trainers are renowned for their modular design, durability, and flexibility. When appropriately supported and positioned in a Pacer, thousands of people of all ages have enjoyed independence and improved strength and confidence.

This item is a medium model (24-34″) and has a weight limit of 150 lbs. Click here for additional product information.



Snug Seat Crocodile Gait Trainer Size 2
Condition: Used – Like New

snug seat croc gait sz2

For children ages 8 to 14 years old, the Crocodile gait trainer size 2 is expertly designed with an easy-to-fold, lightweight frame that is durable and rugged, yet sleek and attractive. The Crocodile gait trainer is a highly versatile piece of adaptive equipment that may be a perfect solution for schools or therapy clinics that need a device they can use for children with varying levels of walking abilities.

This gait trainer will support up to 99 lbs. (45 kg); Maximum target height is 59″ (150 cm). Click here for additional product information.



Resources for Adaptive Appliances

“Pinterest board” — visit this page on the Laffoon family’s blog for lots of great ideas and products to help keep kids with reduced mobility, low muscle tone, or other special needs comfy and stimulated.

The following is a list of online resources for various adaptive appliances. Appearance on this list does not indicate endorsement by the NNPDF. Many additional such companies are available by searching online using the keywords indicated.

Accessible vans

Airway Clearance Vests

Ramps

Standing equipment

  • www.easystand.com  This might be anitem forschools or PT/OTwho would like to purchase for the neuromuscular client
  • www.stand-aid.com  This product might be considered for the person who still has some mobility for a toilet session all the way up to passive standing which helps in circulation
  • www.redmanpowerchair.com  This is a wonderful chair that goes into many different positions from upright/standing to full recline without the need for other chairs that do some but not all.
  • www.spinlife.com  This is an all-terrain wheelchair for snow, sand, gravel etc. This might be useful for the family that wants to keep up with other sports the family enjoys.
  • www.abledata.com  Site is good source of information about equipment for all needs.

Lifts

Incontinence Supplies



Equipment Successfully Exchanged

WedgeRegift8

UmbrellaStroller16

TalkRegift9

Regift4

Regift3

Regift2

Regift1

ModifiedWheelchair15

HeadRegift11

HammockRegift6

GaitTrainerRegift13

ChairRegift7

CarSeatRegift14

BeltRegift10

BedRegift5

AlertRegift12