Day 7 ~ October 2014 as GLOBAL NPD Awareness Month ~ NNPDF Equipment Exchange Program
Dear NNPDF Family and Friends,
For Day 7 of October 2014 GLOBAL Niemann-Pick Disease Awareness Month ~ we are highlighting the Foundation’s Equipment Exchange program, which assists our NPD families to obtain medical equipment that they may not have access to or which isn’t covered under medical insurance. In addition to providing these services, the NNPDF Central Office Staff also assists in finding new homes for medical equipment and supplies which families are no longer utilizing for their loved ones.
As the NPD patient and family needs change during a chronic illness, there may be equipment stored in homes no longer being used which could be put to use by another family in the foundation. Our goal at the NNPDF is to ensure that all NPD families have access to necessary medical equipment and supplied needed to assist their loved ones affected by Niemann-Pick Disease.
The foundation will post and manager a log on the foundation web site describing the type of available equipment, as well as note the specific medical equipment needs that a particular family may be searching for.
This program is being funded in large part by the Jami and Lisa Chavez family in memory of their daughter, Breann, who passed away from NPD Type C in June 2006, at the age of 3 years. The families annual “Ducks for Bucks” event generates the funds needed to offset the costs of shipping equipment from home to home.
For more information on donating to a family in need, or looking for equipment for your family, visit the Newsline page on the NNPDF website: http://www.nnpdf.org/NewsLinePage.htmlOct7