Day 25 ~ October 2014 as GLOBAL NPD Awareness Month ~ International Niemann-Pick Disease Alliance (INPDA)
Dear NNPDF Families and Friends,
As we close out week four of our 2014 October GLOBAL Niemann-Pick Disease Awareness Month, we would like to turn our focus towards the GLOBAL impact that Niemann-Pick Disease (NPD) has as it affects individuals of all nationalities and in all countries around the globe.
While the NNPDF and CCNNPDF work diligently to extend support to any and all families who reach out to us for support, there are times where distance and language do become barriers in offering support for a specific NPD family need.
Identifying that Niemann-Pick Disease doesn’t discriminate and is diagnosed around the world, the NNPDF and the NPD Group United Kingdom co-hosted the initial gathering of established international NPD patient advocacy groups. From that initial meeting in October of 2009, the International Niemann-Pick Disease Alliance (INPDA) was formed.