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Posted by on Oct 13, 2014 in Foundation NewsLine |

Day 13 ~ October 2014 as GLOBAL NPD Awareness Month ~ NNPDF Funded Research

13

Dear NNPDF Families and Friends,

As we all work to usher in this third week of October and the 13th day of our GLOBAL October 2014 Niemann-Pick Disease Awareness month event, will focus on an IMPORTANT role which the National Niemann-Pick Disease Foundation (NNPDF), in collaboration with the Canadian Chapter of the NNPDF plays in the area of forwarding NPD research. The collaborative efforts of the NNPDF & CCNNPDF towards empowering all of our family memberships fundraising.

A key element to both foundations’ research strategy is the ability to track funds raised within the communities of our family membership. Great care is given to identify all monies received at the NNPDF/CCNNPDF Central Offices through family fundraising efforts so that a specific designation by disease type and a restriction towards research can be made. The NNPDF/CCNNPDF is proud to ensure our family membership that 100% of the funds raised through their community events are directed towards NPD research!

Due to the tireless efforts of our NPD family membership over 2013, the foundations will be supporting four new research fellowship and scientific grant laboratories associated with NPD. We will highlight the specific grants and the program details over the next week ~ one grant tied to the medical/clinical support of NPD Types A & B (ASMD) families and three fellowship grants with focus on NPC. 

It is important to note that none of this would be possible without the continued support and personal Perseverance of our NPD family membership on behalf of your loved ones affected by Niemann-Pick Disease.

For more information on NNPDF funded fellowships and grants, please visit the Newsline on the NNPDF web site: http://www.nnpdf.org/NewsLinePage.html#Oct13