The National Niemann-Pick Disease Foundation does not collect any identifying information about individuals visiting this web site (name, email address, etc). We do collect demographic information on the number of hits, number of unique visitors, etc to help us improve the site.
Information voluntarily provided by visitors to the site through email or forms is not sold to other organizations. Information may be shared with officers or members of NNPDF, affiliated researchers and physicians, or other organizations to provide a proper response to questions or concerns.
Information provided to companies listed on the NNPDF Stores is subject to the privacy policies of those companies.
At times, data may be collected for research studies, surveys, etc. When this is done, the recipient of the information will be clearly identified and visitors will have the option of not participating.