A Sincere Thank You From the APMRF, DART, SOAR & NNPDF!
Dear NNPDF Families and Friends,
We would like to share this thank you letter, written collaboratively by the Ara Parseghian Medical Research Foundation (APMRF), Dana’s Angels Research Trust (DART), Support of Accelerated Research for NPC Disease (SOAR) & the National Niemann-Pick Disease Foundation (NNPDF), with regards to the earlier press release from Vtesse, Inc.
That announcement dated, January, 7th 2015
, highlighted the transition of the National Institutes of Health (NIH) / National Center for Advancing Translational Sciences (NCATS) Cyclodextrin clinical trials from a public project to a public/private partnership with Vtesse, Inc.
We would like to encourage anyone who wishes to express their sentiments pertaining to this milestone in rare disease research and treatments to do so in the comment section below and we will pass these along to the key stakeholders.