What Is Pick's Disease?
The National Niemann-Pick Disease Foundation supports families with loved ones who have been diagnosed with Niemann-Pick Disease, which is different than Pick’s Disease. However, the NNPDF occasionally receives inquiries about Pick's Disease. This page is provided as a basic referral for those seeking information about Pick's Disease or Frontotemporal Dementia.
For information about Pick’s Disease or Frontotemporal Dementia, please contact:
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Voice: 800-352-9424 or 301-496-5751
TTY (for those using adaptive equipment): 301-468-5981
Web site: http://www.ninds.nih.gov/disorders/picks/picks.htm
Association for Frontotemporal Dementias (AFTD)
Radnor Station Building 2 Suite 320
290 King of Prussia Road
Radnor, PA 19087
Tele: 267-514-722; 866-507-7222
Web site: www.theaftd.org
National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
Tele: 203-744-0100; Toll-free: 800-999-6673 (voicemail only)
TDD Number: 203-797-9590; Fax Number: 203-798-2291
Web site: http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pick%27s%20Disease
Alzheimer's Disease organizations may be able to provide information about Pick’s Disease or suggest appropriate local resources and support groups.
Additional resources:
Pick's Disease Support Group (UK)
What is Pick's?-article 1 What is Pick's Disease?-article 2 NINDS Pick's Disease info AFTD Pick's Disease info
“The National Niemann-Pick Disease Foundation (NNPDF) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. This site is an educational service of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. Information contained or suggested on this Web site does not constitute medical advice. For all information related to care, medication or treatment, the NNPDF recommends consulting a physician to determine if information presented is applicable. Please review these additional cautions about medical information provided on the Internet.”