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NNPDF Listservs

NNPDF Listservs


Email Groups

NNPDF offers four email lists (listservs) for use by Niemann-Pick families, friends, caregivers, and other interested parties. (A fifth listserv, the “Angels” group, is run by families and caregivers.)

These listservs offer a place where you can share your thoughts, ideas, and challenges with others who have faced, or who are facing, Niemann-Pick Disease.  Ask questions, raise concerns, express your feelings, offer support to others, or simply listen; the lists are made available to help meet your needs during this journey.

Lists run by NNPDF are subject to Guidelines on the use of this service. By joining any list, you agree to abide by the terms of the Guidelines.

Type A List ~ For families, friends and others interested in Niemann-Pick Type A. 

Type A Listserv Home Page
Sign In/Join Yahoo! Groups
Join By Email

Type B List ~ For families, friends and others interested in Niemann-Pick Type B. 

Type B Listserv Home Page
Sign In/Join Yahoo! Groups
Join By Email

Type C List ~ For families, friends and others interested in Niemann-Pick Type C.  

Type C Listserv Home Page
Sign In/Join Yahoo! Groups
Join By Email

Sibling List ~ For children and young adults who have a brother or sister with Niemann-Pick Disease. 

Sibling Listserv Home Page
Sign In/Join Yahoo! Groups
Join By Email 

Angels List ~ For those who have lost a loved one to Niemann-Pick Disease.
(This list is not run by NNPDF.  It is run by families and caregivers).

Angels Listserv Home Page
Sign In/Join Yahoo! Groups
Join By Email 

 

FAQs (Frequently Asked Questions)


1.  How do I join one of the NNPDF’s listserv groups? 

A free Yahoo! account is required for membership in any NNPDF listserv group.

In an effort to prevent spammers and commercial entities from joining the NNPDF listservs, all new memberships must be approved by a moderator.

a.  Visit the Listserv’s Home Page — Select which listserv you would like to join (Type A, Type B, Type C, etc., above) and click on the “Listserv Home Page” link below it.  Once there, use the “Sign In” button at the top to log in to an existing Yahoo! account, or the “Sign Up” button just below it to register for a Yahoo! account. Once you are successfully logged in to Yahoo!, back at the Listserv’s Home page, click “Join This Group.” Your membership will be reviewed by a moderator and confirmed, within a couple of business days at the most.

OR

b. Sign In or Join Yahoo! — Click on the “Sign In/Join Yahoo!” link.  You will be asked to log in to your Yahoo! account, or to register for one if you do not already have one. Once you are successfully logged in to Yahoo!, visit the Listserv’s Home page and click “Join This Group.”  (Use the “Listserv Home Page” links above, or you may use Yahoo’s Search function to locate the particular listserv you want to join.)  Your membership will be reviewed by a moderator and confirmed, within a couple of business days at the most.

OR

c.  To join via email —  If you are unable to navigate through either of the above methods and need assistance joining, click the “Join by Email” link and enter your request into the body of the email.  Your membership request will be reviewed by a moderator and confirmed, within a couple of business days at the most.

2.  How do I change my email address associated with a listserv group? 

Click on the “Listserv Home Page” link for the appropriate listserv (above), and sign in to your Yahoo! account.  Click “Edit Membership,” and then “Add new email address.”  Be sure the new email address is then selected as your “Primary Email Address.”

3.  How do I unsubscribe from a listserv group? 

Click on the “Listserv Home Page” link for the appropriate listserv (above), and sign in to your Yahoo! account. Click “Edit Membership,” scroll down to the bottom and click the “Leave Group” button on the bottom right.  You will see a message asking you to confirm that you wish to leave the group.  Click “Leave Group” on this window, as well, to complete the process.

For more help with Yahoo! (including managing your memberships and how to post a photo), visit Yahoo! Help pages here and here.

To join the NNPDF, please scroll back up to the links to Membership Forms near the top of this page.